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Our 3-Year-Old Has Had 30 Surgeries - He's No 'Monster' |
Published : 28-03-2025 - Duration : 10:03 - View : 12
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THREE-YEAR-OLD Raedyn was born with a rare genetic condition known as Pfeiffer syndrome. The condition caused Raedyn's skull bones to fuse together earlier than they should have in the womb, meaning he was born with a visible difference. More alarmingly, at birth, Raedyn's airway was blocked - he was unable to breathe and had to be placed immediately on life support. Mom Natasha recalls how "doctors asked if we wanted to keep him alive... Or he can pass comfortably here in your arms." There was no doubt in the parents' minds: "I just said, 'No, we're going to fight for him and we want him here with us'." Raedyn had a trach placed so that he could continue to receive ventilation support and Natasha and Rufus (Raedyn's dad) began working with doctors to ensure their son had the best prognosis possible. He has now had 30 surgeries, including 14 head reconstructions - and has another surgery on the horizon: a third attempt at bringing his e
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